The Great Ormond Street Hospital Children’s Charity approached me at the beginning of the year asking me to write something for them. As Mother’s Day was approaching, I decided to write something for the mothers keeping vigil at their child’s bedside in the hospital. It was written a year after Dominic’s 8 month long admission
We had another trip up to Great Ormond Street Hospital yesterday afternoon. It was a situation that proved the necessity of keeping a good working relationship with the doctors there, no matter what the history. Dominic’s knee had starting dislocating randomly just before we left the hospital. Obviously with everything else going on (see here
We have a plan (I have an overwhelming urge to say Batman after that, but have resisted the temptation in order to maintain at least a visage of sanity at this juncture of our incarceration). To catch you up since our last entry we have excelled at defining the 'quo' in status. We have tried
Dominic and I are currently languishing in Great Ormond Street after what should have been a relatively straightforward operation to give him a surgical jejunostomy. Unfortunately Dominic doesn't do straightforward and we are now in our fourth week of recovery with no one being able to predict how much longer it might take for him
We had to call the family and ask them to come and say their goodbyes. I won’t go into how it felt to be told that or how it feels now to write about it. It’s still too raw. I remember screaming though.