…There was more truth in that silence than any blog post or facebook update could ever have come close to. There was no way of parcelling it up, of telling the story, there was just a nothingness. No problem for me to solve, no battle for me to fight. And still I stayed silent.
I have broken my prolonged silence (more on that soon) to share a very special video in honour of feeding tube awareness week. I would be forever grateful if you could find a minute to share it, as ultimately the more people that watch it, the further the message can travel.
Have you ever wanted to stare, but known that you shouldn’t? This is a video of the most beautiful child in the world, telling his story of a life with feeding tubes- of course you’ll stare, you won’t be able to tear you eyes away
We have a plan (I have an overwhelming urge to say Batman after that, but have resisted the temptation in order to maintain at least a visage of sanity at this juncture of our incarceration). To catch you up since our last entry we have excelled at defining the 'quo' in status. We have tried