Just Bring the Chocolate

The (misunderstood) art of extreme parenting

Lilia extreme parenting Dominic Wheelchair
Facebook
Twitter
YouTube
RSS

Menu

Skip to content
  • home|
  • all about|
    • me|
    • my family|
    • my blog|
  • the blog|
  • medical stuff|
    • tube feeding|
    • being undiagnosed|
    • living with the NHS|
    • Pica|
  • special needs stuff|
    • Special Needs Jungle|
    • Siblings|
    • What is ‘normal’ anyway?|
  • contact me|
You are here: Home / Blog / To all the fathers of special needs children

To all the fathers of special needs children

Published on 15th Jun 2014 by Renata

Dear fathers of special needs children,

I don’t get to meet you that often, you’re not a rare species so much as a precious one. As much as I’m conscious that there will be men who will take a very active part in their disabled child’s care, the fact is that the majority of people that I sit opposite at hospital appointments are father with daughter women. I do see a lot more fathers when the children are just starting out on this journey; fathers who don’t have the faintest idea of the simplest baby led weaning first foods. The sense of gravity that descends on parents when the appointments to see specialists start dropping onto the door mat will often prompt you to be sat in front of me sharing this alien world that requires us to take our children to appointments to discuss everything that is wrong with them. I see you sat nervously reading something on your phone to while away the long wait, stopping to wonder occasionally why the NHS hadn’t yet realised that it could save itself a fortune just turning the heating down rather than cooking everyone until their brains addled.

But after the initial shock of the first appointments, the reality soon sets in that life still goes on as relentlessly as it did before you had a child with special needs. I may see you about if you havefather being made up by daughter a job that allows you to take the time off to stay with your child in hospital, or if you have an agreement to share the care with your child’s mother. Sometimes you are the one trailing the siblings into the hospital with the mismatched clothes and big grins declaring their pride at how grown up they were this morning when they absolutely insisted that they completely had to pick their own clothes to visit mummy in. I may not see your face that often, but I recognise that you’re there.

If I see a mother sat alone by her child’s bedside day after day, I don’t assume it’s because you don’t care. I know that you think about them all the time and wish you could do something to make it all better. I know that sometimes you don’t think you’re as brave as you should be, but of course bravery comes in many forms.

Sometimes the bravest thing you can do is make life carry on, it’s walking away from your sick child and scooping up their sibling, knowing that they are just as much in need of your love. Sometimes it’s going to work and pretending like everything is normal just so the pay check keeps coming in. Sometimes its retaining your sanity so you can be someone else’s rock. Sometimes its just listening when no one else understands.

special needs dad with child
You are the person I wait to talk to. Impatiently waiting for you so I can share our news. Because you are the only other person that knows how much that tiny milestone means to us, and can whoop and high five and turn our happiness into a celebration.

I know that your heart feels the same pain mine does, even if your face says something different, and I know that when you shout at the cat it’s because you feel just as helpless and frustrated as I do, and that the cat will forgive you as soon as it’s time for his dinner.

I know when I’m telling you bad news and pause, mid sentence, to take a deep breath, that you instinctively know that the tears are just a hug away from starting and so you quietly let me finish before gathering me up and letting me sob into your shoulder.

3d glassesI know that we don’t always dance our quirky family waltz quite in time with each other, but we try to forgive the odd stepped on toes along the way in order to enjoy the dance together.
You are the story teller, the mickey taker, the medicine giver, the wheelchair pusher, the homework helper, the fart joke teller, the sanity saver, the house shaking snorer, the rule breaker, the child carrier, the hug giver, a precious part of a family.

When I first started this journey with three young children, two with special needs, I took my first steps completely alone. Whilst I’d like to acknowledge all those fathers that add so much to their children’s lives, holding child with feeding pumpwith additional needs or not, I would like to say an extra special thank you to the man that found our little family of four and was brave enough to love us, knowing that his life would never be the same again. Being someone’s Daddy has very little to do with whether your DNA has any claim. It’s whether or not the children trust you to keep their secrets, to listen to their dreams and to catch them when they are about to fall. We do not colour our children in with all of our hopes and dreams for them, they colour us in, they choose to make us theirs and take us along with them. He made a choice to be one of the most significant people in their lives and they chose to trust him with everything they had.

So fathers, no matter how you fit into your families—whether you work 60-hour weeks, you’re a stay-at-home dad, or you’re a divorcee who shares your child’s care—you always have the ability to make a profound difference, no matter what hand you are dealt in life. This is a very precious gift that can make all the difference to your family’s lives. Be proud of the father that you are and know that who you are to your children is who you choose to be. If you have been living with a violent partner and feel that your kids would be in danger in their hands, then you should look at this site and hire the best family lawyer. If you want to speak with experienced divorce lawyers about divorce and child custody, make sure to consult the experts. Additionally, if you are located in Maryland and need specialized advice on securing your child’s future, consider reaching out to skilled custody lawyers in Maryland who can guide you through your options. Visit Sisemore Law‘s website and contact their team. Divorce lawyers can help you with divorce and child custody matters. So if you need legal assistance, make sure to consider hiring a Chicago divorce lawyer. In many legal cases, polygraph tests are employed to discern the truth. These are often conducted when a partner in a relationship suspects infidelity. While controversial and not foolproof, these tests can sometimes provide clarity in complex emotional situations. Contact lie detector london for professional services. And those who are looking to notarize their documents may consider searching for a notary near me online. for 25 seconds
So fathers, no matter how you fit into your families—whether you work 60-hour weeks, you’re a stay-at-home dad, or you’re a divorcee who shares your child’s care—you always have the ability to make a profound difference, no matter what hand you are dealt in life. This is a very precious gift that can make all the difference to your family’s lives. Be proud of the father that you are and know that who you are to your children is who you choose to be. If you have been living with a violent partner and feel that your kids would be in danger in their hands, then you should look at this site and hire the best family lawyer. If you want to speak with experienced divorce lawyers about divorce and child custody, make sure to consult the experts. For those residing in Maryland, consulting with reputable custody lawyers in Maryland can provide tailored guidance on safeguarding your child’s future. Visit Sisemore Law‘s website and contact their team. Divorce lawyers can help you with divorce and child custody matters. So if you need legal assistance, make sure to consider hiring a Chicago divorce lawyer. In many legal cases, polygraph tests are employed to discern the truth. These are often conducted when a partner in a relationship suspects infidelity. While controversial and not foolproof, these tests can sometimes provide clarity in complex emotional situations. Contact lie detector london for professional services. And those who are looking to notarize their documents may consider searching for a notary near me online.

father with disabled children

Liked that? Try one of these...

Egg staring: What happens when the egg answers back
Monsters in the Cupboard
The world's first specialist nurse for undiagnosed children - Happy Undiagnosed Children's Day 2015

Posted in Blog, Disability, Favourite Posts, Heartwarming, Hospital, Parenting | Tagged being a good father, fathers, fathers of special needs children, parenting special needs children
A Freak Like You
Silent Sunday
My Baby is Here!

Post navigation

← Post Pals: Why we look after siblings The world’s first specialist nurse for undiagnosed children – Happy Undiagnosed Children’s Day 2015 →

21 Responses

  1. Angela Goulder says:
    15th Jun 2014 at 9:01 am

    Happy Father’s Day Roger xxx a top dad 😉

  2. Becky Rideout says:
    15th Jun 2014 at 9:13 am

    Wonderful words x Thank you for sharing some lovely family photos xx

  3. Karen Parsons says:
    15th Jun 2014 at 11:50 am

    Beautiful x

  4. Jenny Soppet Smith says:
    15th Jun 2014 at 2:09 pm

    Sobs x

  5. Siobhan from Everyone Else is Normal says:
    15th Jun 2014 at 8:46 pm

    So beautiful, Renata. Part-tribute to all fathers of special needs and part special tribute to R who really deserves such a big shout out. Love the bit about mismatched clothes – so true of all fathers visiting mothers in hospitals. And the way you write ‘but then bravery comes in different forms’….so true.

    1. Renata says:
      22nd Jun 2014 at 9:22 pm

      I have no doubt that there are some fathers who’s ability to colour coordinate clothes shames any attempts I’ve made, but it’s one of the most enduring memories I have of Elliot and Lilia’s visits in hospital.

  6. Stephs Two Girls says:
    16th Jun 2014 at 4:35 pm

    Written with such feeling as always; brought tears to my eyes as most of your posts do, funny or poignant 🙂 So glad you have found your rock and that extra strength you need – he is indeed very special, as are you (no pun intended ;)) x

    1. Renata says:
      22nd Jun 2014 at 9:20 pm

      Thanks Steph. I can be so difficult to connect when life is so fraught all the time. Even if you can’t find the physical time, I try and keep a little bit of head space clear to remind me what really matters. It doesn’t always work, but it’s a nice thing to strive for!

  7. Singing Hands says:
    16th Jun 2014 at 7:21 pm

    I think this is one of my faves Renata! Well done and well done to your lovely R too xx

  8. Mei says:
    19th Jun 2014 at 12:01 pm

    Not sure when you wrote this Renata but just saw it on a friend’s FB page. It’s truly beautiful and has made tears flow. Special people find each other x

    1. Renata says:
      22nd Jun 2014 at 9:18 pm

      Mei, I wrote it in the early hours on Father’s Day. Thank you for your kind words, he is rather special x

  9. Carol says:
    20th Jun 2014 at 8:33 am

    Tears came so quickly as I read this which reflects so well the feelings that mainly go unsaid. We may not always waltz in time together but we always try to perform the best waltz we can for our children. Although the music has run out for one of our special boys we are listening out for a new tune to dance to.

    1. Renata says:
      22nd Jun 2014 at 9:17 pm

      So true x

  10. Actually Mummy... says:
    22nd Jun 2014 at 8:39 pm

    Ah Renata I have goosebumps now. I’m so glad you have someone there to share it all with x

    1. Renata says:
      22nd Jun 2014 at 9:16 pm

      Thanks Helen, sometimes you have to stop and remind yourself of all the good things in your life x

  11. Hayley says:
    23rd Jun 2014 at 12:25 am

    Renata. simply beautiful. After our chat and the britmums dad poem, this briught a lump to my throat. Have sent to Bob’s inbox…

  12. Angela says:
    23rd Jun 2014 at 4:15 am

    I am so utterly privileged to know someone who is so eloquent with words and to call them my friend, despite the fact that I haven’t see any of you in far too long xxxx 🙁 Your chap is a legend and you are too xxxx as you say bravery takes many forms. Sending massive hugs and hopes for a good catch up soon xxx

  13. Vickie says:
    17th Jul 2014 at 2:30 pm

    Just found you on Top Mommy Blogs, Great post!

    1. Renata says:
      3rd Aug 2014 at 6:53 pm

      Thank you

  14. Pingback: 10 Useful Disability Blogs Recommended by Sensory Guru « Sensory Guru
  15. thiet ke shop says:
    31st May 2016 at 10:28 am

    Happy Father’s Day Roger

Comments are closed.

Recent Posts

  • Best Sites to Buy High-Retention Facebook Likes for Business Pages
  • Write for us sponsored posts
  • Thank you for the job
  • The true price of disability
  • How to Help Your Child Cope with Divorce: Age-by-Age Guidance
  • Identifying and Addressing Harassment in the Workplace
  • Thank you for the freedom
  • And then he fell off the cliff

Things that Matter

Undiagnosed
NHS
normal
siblings
SWAN UK

Graduate of the School of Health and Care Radicals

certified NHS change agent

Support means a lot

Change FinalistNOMINATE ME BiB 2013 VIDEOFINALIST BiB 2014 INSPIRE
Tots100 index of UK Mummy and Daddy Blogs
Follow on Bloglovin
Top Mommy Blogs - Click To Vote!
mumsnet
TOTS 100 - UK Parent Blogs

Say hello on twitter

Tweets by @RenataBplus3

Follow on Facebook

Tags

baby bile blogging blog hop charity child children children's hospital diagnosis disabled doctors Dominic Dominic Blower elliot family fears featured friendship gastric losses gastrostomy gosh great ormond street great ormond street children's charity great ormond street hospital Health hospital management hospital politics in-patients institution institutionalised institutionalized jejunostomy mainstream education nhs operation optimism pain parents of special needs children Renata Blower roux en-y roux en-y jejunostomy surgical jejunostomy SWAN UK wheelchair Whizz-Kidz

Copyright © 2025 Just Bring the Chocolate.

JBTC is powered by WordPress with help from Cakifo