I have broken my prolonged silence (more on that soon) to share a very special video in honour of feeding tube awareness week. I would be forever grateful if you could find a minute to share it, as ultimately the more people that watch it, the further the message can travel.
A very special story (for feeding tube awareness week)
@RenataBplus3 Love the new look of your blog, it’s gorgeous
@c_oreilly Thanks lovely, it’s very unfinished though, still trying to get it to behave on mobile devices, but glad it looks ok
yes with pleasure… thanks Renata
can i share it on our main board Renata Blower? Dominic is one amazing boy!
I have shared it here i hope this was ok?https://www.facebook.com/livingwithreflux
Yes of course x
@annieqpr thanks for sharing x
@RenataBplus3 welcome Renata, will do on facebook too when I work it out!
@RenataBplus3 anytime x
@jenniejack thanks for sharing sweetie x
@sherbettlou Thanks for sharing this, much appreciated x
@MummyWhisperer thank you for sharing x
@RenataBplus3 pleasure honey, I’ve sent it to my fb page & profile too. He’s beautiful. It made me cry.
Squirrel is lonely without you
hi Renata, think you’re both amazing x
Thanks Nicola, not a shred of truth in it unfortunately, but appreciate hearing it
Reminded me so much of my own son who has had 3 fundoplications,countless gastrostomys & is now fed by permanent jejunostomy now ,that saved his life too! X
@c_oreilly @renatabplus3 brilliant! Thanks for sharing! My sis has a PEG tube, going strong for 2 years now.
@bananarahmana @c_oreilly thanks, lovely to hear other positive stories x
Karen – tubies are, very often, and in a slightly weird way, really positive additions for families
Kim – gonna phone, give me a sec to sort D out x
Kk x
Most deffo , Kieran is nine now & his first one was done at 11 month
Just love that last pic! Hadn’t realised how much he looks like his older brother when he was younger. Makes sense though, you’ve all got the same cute smile
@StephsTwoGirls They all do look remarkably similar it’s true. I actually think Dominic looks just like his sister, certainly when Lilia used to put clips in his hair the resemblance was uncanny (she was still in denial that he was born with a willy)
@c_oreilly thanks Candi x
@stephc007 thanks for sharing- p.s did I tell you I became a governor?
@RenataBplus3 think I saw somewhere… Well done you! It’s kinda good to be on the ‘inside’ though it can also be tricky…
@stephc007 yes must have a chinwag about it. Should we put another coffee date in the diary?
@RenataBplus3 that’d be lovely. Know Jenny still keen on the curry idea too…! Coffee easiest for me 130-230 Mon-Wed or else some Th/Fri s.
@RenataBplus3 coffee date lovely – what times good for you? Also, could you DM me your email – there’s a conference coming up re schooling
@stephc007 Anytime after half term probably. I think I am possibly more flexible than you, so throw some dates at me (will message you now)
@RenataBplus3 could you do coffee 130-230 on 5th or 6th March?!
@stephc007 sounds good, it’s in the diary (for the 5th)
@RenataBplus3 fab. will you come here? or else we could meet somewhere near my school and I wouldn’t be in a rush to leave at 230…
@BeingMrsC thanks for RTing that x
@RenataBplus3 you’re welcome! X
thank you for sharing, one of my 6 month old twins has been tube fed since he was 9 weeks old, xx
@christinekelly79 Always lovely to meet another tubie mum. Thanks for leaving me a message to let me know you’d popped by x
@TheBookMums thanks Lisa x
@RenataBplus3 Welcome scrum x
I love you you incredible wonderful woman and beautiful Mummy. My turn to ask you to marry me! I waited to give this my full attention and I’m glad I did. I have tears and I recall hating seeing the tube on Natty’s face and only taking photos with it off. It is a big deal and you deal with it perfectly.
@DownsSideUp Thank you Hayley, means a lot. And yes, if you get divorced first, I’ll gladly be your wifey
Fantastic post Renata really helps get the message across xx
@RenataBplus3 Thanks so much for sharing this with us. Dominic is so beautiful not unlike his Mum
@BritMums aw, shucks… thanks… and thanks for the RT, hugely appreciated x
@RenataBplus3 such a good way to raise awareness
@BritMums people tend to be too polite to ask questions, but demystifying things +vely is normally the best way of gaining understanding
@BritMums (I don’t find the ‘no one understands us’ approach does anything but alienate people more)
@RenataBplus3 good of you to take time out to raise awareness as you do. Inspirational
@BritMums that’s incredibly kind of you to say, not true, but much appreciated x
@EczemaChildren thanks for RTing, much appreciated
@RenataBplus3 No problem at all
@MOSNArmyB thanks so much for sharing this x
@tots100 thanks for the RT x
@RenataBplus3 Thank you for sharing this with us Renata. A fantastic video that really tells Dominic’s story.
@EmmasHopeBook thanks for RTing x
@RenataBplus3
@Mom2Rebels thank you for RTing x
@geekgirlusa thanks for RTing x
@LorcaDamon thanks for RTing x
Inspiring. Really beautiful pictures and words, Renata. Whatever other luck there is in his life, Dominic is lucky to have you. Xxx
@emma_kate5 Great video… And an all too familiar story. I’m grateful for the help they brought her… And grateful she grew out of it!
What a fabulous video! I am also a tubie mum, reflux also being one of the main issues though we have a mini button and my son can eat pureed food but fluids go down the tube. So glad to see he is now doing well x