It feels like a while since I’ve updated. In practice I think it’s just that the weekend draaaaaaaaged with such efficiency that it just feels like weeks have passed. I’m delighted to say that Mickey Mouse did make an appearance on Friday and even brought Minnie along for the ride. I’m even more pleased that
Whilst I appreciate the rich variety of people that I am privileged enough to encounter courtesy of the NHS, I really wish you could wing it so there are slightly more sane people in my vicinity, rather than the collection of prehistoric flubber that has currently taken to lurking outside my bedroom door swearing at their velour clad offspring.
We have a plan (I have an overwhelming urge to say Batman after that, but have resisted the temptation in order to maintain at least a visage of sanity at this juncture of our incarceration). To catch you up since our last entry we have excelled at defining the 'quo' in status. We have tried
So another week has rolled by with not much happening. There does seem to be a downward trend with his aspirates, but chickens… counting… not. One thing that has been achieved is getting the consultant, dietician and ward manager to all sit down and agree a plan with me. Trust me, this is impressive. Principally
Dominic and I are currently languishing in Great Ormond Street after what should have been a relatively straightforward operation to give him a surgical jejunostomy. Unfortunately Dominic doesn't do straightforward and we are now in our fourth week of recovery with no one being able to predict how much longer it might take for him