The idea is move as far away as we can from the ‘heart wrenching photo of a child with mournful music with informative text over the top’ approach and instead to reflect that all we want for our children is that they get to have a happy childhood just like other children. So I have decided to make a tribute to Pharrell’s ‘Happy’ video made from video clips sent in by families of undiagnosed children.
Today is NHS Change Day. So, in honour of those good souls full of enthusiasm and drive to make the NHS a better and safer place for its patients, I’m going to tackle one of those subjects that are usually better left waiting outside with religion and politics. I would just like to make a
Over the years I’ve had the privilege of meeting many parents with children who are somewhere on the spectrum. And in that time, I have had a fair few conversations with them where I had agreed that, indeed, Elliot appeared to have many traits in common with their child but that was more down to his rather quirky personality rather than the fact that his brain was wired differently. You would have thought, being relatively more informed than the average human being about a vast array of conditions and syndromes that my brain would have been screaming at me to suspect that perhaps it was more than a coincidence. Apparently my conscious brain was out for a long lunch though.
On Saturday 13th April 2013 I will be celebrating Undiagnosed Children’s Awareness Day, probably at home, perhaps with an acquired bit of Easter chocolate, but undoubtedly with a huge sense of pride. I guess I don’t talk that much about Dominic (and of course Elliot and Lilia as we know they have a milder form)
…There was more truth in that silence than any blog post or facebook update could ever have come close to. There was no way of parcelling it up, of telling the story, there was just a nothingness. No problem for me to solve, no battle for me to fight. And still I stayed silent.