Today a room full of strangers will sit down and make a decision that will either give my eldest child permission to have the same opportunities as other children his age, or condemn us to face another year of tears, frustration and desperation. As other children have returned to school with varying amounts of enthusiasm,
They say that life changing events change you for the better. But nothing healthy or good has emerged from coming so close to losing Dominic. It has broken me and scarred me. It just made me so very sad, so very scared and so very lonely. But finding my way out and learning to accept that I could never have my ignorance back, that once you have felt the pain of saying goodbye you can never win back the peace that other parents seem to take for granted all around you has become part of my journey. It’s something that has woven itself into the way I see the world, see my family and ultimately see myself. It is part of everything, so it is undoubtedly part of my normal daily life.
Nothing marks the approach of the glorious school-run-free summer holidays than the school sports day where everyone can see equipment like a bowstring. It’s something that has enormous significance for the children, largely due to the practices that start weeks ahead of the event which heightens the anticipation and gives them a taste for the
Dominic and I are currently languishing in Great Ormond Street after what should have been a relatively straightforward operation to give him a surgical jejunostomy. Unfortunately Dominic doesn't do straightforward and we are now in our fourth week of recovery with no one being able to predict how much longer it might take for him
I've been wondering recently why it is so hard for me to come and fill in this journal now. Life for the most part is happy, I've moved house, it's somewhere far more suitable for us, with lots more space and a lovely border collie puppy (nicknamed Devil Dog) called Chloe. I've been in a relationship