I have broken my prolonged silence (more on that soon) to share a very special video in honour of feeding tube awareness week. I would be forever grateful if you could find a minute to share it, as ultimately the more people that watch it, the further the message can travel.
This was just too funny to not share... I am, perhaps, in a position where I have cause to be more grateful than most parents that Dominic has wonderful teachers and brilliant support staff at his school. Because of this I, of course, make sure I remember to give them a little gift and and Christmas card at this time of year, just to let them know that we appreciate them. This year, now Dominic is a slightly more proficient writer, I asked him to write a little something too, you know I thought it might be sweet. I should have ...
By the time you read this post, I will have packed a suitcase, boarded a fast train to London and relocated the few things that Dominic and I can survive with into a room somewhere in the heart of Great Ormond Street hospital. I have been preparing to separate myself from my family and hand Dominic's future over to someone else for a couple of months, ever since Dominic's pains first started, but it doesn't stop my heart beating faster and the tell tale beads of sweat appearing on my forehead whenever I actually let myself think about what the ...