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Undiagnosed Children’s Awareness Day 2013

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Undiagnosed Children's Awareness Day 2013

On Saturday 13th April 2013 I will be celebrating Undiagnosed Children's Awareness Day, probably at home, perhaps with an acquired bit of Easter chocolate, but undoubtedly with a huge sense of pride. I guess I don't talk that much about Dominic (and of course Elliot and Lilia as we know they have a milder form) not having a diagnosis. I accepted a long time ago that finding an answer to why this had happened and what it meant we might face in the future might never happen. Although the unknown is one of the hardest things an information junkie like me ...

Fluff and Circumstance: the conclusion to egg watch

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silkie chick just hatched

I feel a bit squidgy inside, gooey almost. It's not from the glut of Easter eggs that I have eaten (that has been hampered by the fact that there seemed to be an Easter egg shortage in Hertfordshire this year) but because of fluff, and newborn-ness and big eyes and wobbly, unsure legs. Shall we all just pause for a second to sigh in the most soppy way we can manage? Ah yes, the hours already spent sighing and egg watching were well worth it. I was pretty worried about the little guy for a while, but a bit of R ...

Egg staring: What happens when the egg answers back

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white bearded silkie
Yes, you read the title of this post correctly. I have spent most of the day staring at an egg. It’s not just any egg though, it’s an egg with personality. To be fair the personality probably comes more from the chick inside it than from the egg itself as the shell is the only eggy bit left.

Dear man in a suit: A conversation with Edward Timpson about SEN reform

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department of education

The warrior parent. A much used label for a parent with a special needs child who fights the system until they are bruised and bloodied and then still gets up, spits out a loose tooth and goes in for a second round. Some parents wear this label as a badge of pride, and I completely understand why, they are rightly proud of the brilliant job they have done in advocating for their child. So recently why do I find myself feeling more and more removed from the angry-parent approach to bringing about change? It's not just that I find some ...