For once I am going to take an uncharacteristically minimalist approach to how many words I use to get to the point.
All I’ll say is that when I asked for my children’s help I was overwhelmed by how they all unquestioningly rallied to help me put this together. They are just as proud of the finished product as I am and so they should be as I’m sure you’ll see how much work they put in to helping make it as wonderful as it is.
Tomorrow is Undiagnosed Children’s Day and I would love to show the kids how much of an impact they have made. So please take the time to enthuse about the video to anyone who’ll listen to you and help us get it shared as much as possible. We need to reach as many people as we possibly can, but can only do it with your help.
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Renata ♥♥ Oh my goodness!! This is absolutely fabulous!! You should all be sooo proud!!
I will be sharing widely!
Thank you Leah x
Fantastic video, especially loves the beginning bit, what a star Dominic is! well done for all your hard work.
Thank you, I’m so proud of him, he put so much effort into it
In two words: Brilliant and Inspiring!
I’ll be sharing this!
And Dominic, Elliot and Lilia, your stars!
Thank you Maartje, they’re amazing aren’t they. All the kids can out-dance most adults I know!
That is so cool. I defy anyone not to smile all the way through. All the kids are absolutely brilliant. Well done.
I find it leaves me wanting to laugh and cry at the same time. Bizarre!
Ps. I have 2 adorable ‘swan’ grandchildren and know how much fun -and cheeky- they are!
Utterly brill! Look forward to having it on SNJ tomorrow xx
Yes, never fear, a post will appear!
What Leah says. What a video. All too wonderful to single out any part of it and its production.
It is about happy; and undiagnosis can obstruct happy, in oh so many ways. Got that.
Thank you Colin
Amazing! Gorgeous video Renata, you’ve done an absolutely brilliant job with it. Have shared around a few friends who I know will cry the same happy tears I did when they watch such a celebration xxx
Thank you Ruth. Any help you can give sharing it is hugely appreciated!
That’s fantastic Renata, some pretty impressive dance moves too 😉 xx
It’s genetic you know. They were born with funk! You should see me bopping around when I hoover, not our normal mum-dancing
The video left me feeling that the dynamic bond and relation and interaction between who you are and who Dominic is and is becoming, is crucial and central. It’s as if your part in things sees Dominic dance, despite what might otherwise have seen him not. It’s then interesting that GOSH has to turn away the honesty of what makes you who you are. Also makes sense that, by extension, your are not overwhelmed by “like”-button expressions of awareness. There would then seem to be much more to be conveyed, about what it is that makes you tick; and about how your life-force and vibrance nurtures such beauty and vibrance in Dominic.
This is soooooo good! You had us laughing out loud. Such a good vid.
Dom, your future career in acting is a dead cert!
Eliott – hip hop is so you.
And Lilia – the Wicked Witch of the North (or is it South) would kill for those tights of yours….
And no surprises the music was from Despicable Me, eh? Love that song.
And now I know what you got up to in the Easter hols….
will share widely, Siobhan, Ciara & Sam, and Matt x
Yeah Lilia’s dress sense is uniquely her own. I love the fact that all the kids were so happy to throw themselves into doing it, even the teenagers!
What a fabulous video, made me smile so much 🙂
Can’t believe how grown up Dominic is now, he is absolutely scrumptious, bless him.
Love to your lovely family xx
He is a bundle of scrumptiousness 🙂
Freya and I have just watched it – Freya asked lots of questions and really wanted to know what it is like being a child without a diagnosis. The video really did its job. Brilliant. Well done to you and Dominic (and Elliot and Lilia too).
That’s brilliant Mel 🙂
Awesome. Our daughter Freya is also undiagnosed but I thought the day was the 13th of April.
I never swear online, but Renata you are bloody bloomin’ brilliant. I have tears in my eyes, of pride to count you as a friends, but also at the very important message you have just portrayed perfectly. We will make this go viral….
If only Hayley… now that would be amazing!
This made me cry. Love it.
My daughter is now 10 months old and doctors dont know what syndrome she has. We have a feeling we will never find out. So thank you. Thank you for showing us parents too that sometimes we have to stop fighting.
Love from The Netherlands.
Don’t give up hope, but equally don’t let it overshadow who she really is. You know her better than anyone, that is her most valuable tool in life x
Absolutely love your video
Thank you, so do I (if that doesn’t sound too arrogant). I had to watch it hundreds of times to edit it, and it still had the same effect on me at the end of the editing as it did at the beginning. I love all those kids and parents for just going for it!
This appeared on my face book page under “Mommies of Miracles” newsfeed. I did not know such a group existed! Excellent video!!!!!!!!!!!
I am going to forward it to my face book friends but ESPECIALLY to a friend who has a beautiful 4 year old named Faith. Faith has numerous issues and yet the doctors can’t pin point what they can do to help. Hope this will be of interest to her as it was to me!
Thank you Cheryl. Finding other families with undiagnosed children is part and parcel of what raising awareness should be about. I hope that Faith and her family can find support by joining SWAN x
That was BRILLIANT! (found you through a link on Holland Bloorview’s blog)
Thank you. I should go and find the link, that’s a great blog
Lovely video — thank you! Our son is 7 years old, undiagnosed, but has the best smile EVER!
Ah, when they smile that big old goofy smile it’s easy to forgive them anything isn’t it 🙂
Brilliant video Renata! I love how professional your son is- and how funny!
Plus your pop up head at the start made me giggle!
Thanks for submitting this post to the BritMums Video Roundup – I will use it in May!
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