I have broken my prolonged silence (more on that soon) to share a very special video in honour of feeding tube awareness week. I would be forever grateful if you could find a minute to share it, as ultimately the more people that watch it, the further the message can travel.
It was Easter Sunday last week, and my Facebook page was littered with people reminding me to remember the true meaning of Easter which apparently has nothing to do with chocolate. How disappointing. Although to be fair, for the most part, in our family it kind of isn't anymore anyway. It is not, however, because
They say that life changing events change you for the better. But nothing healthy or good has emerged from coming so close to losing Dominic. It has broken me and scarred me. It just made me so very sad, so very scared and so very lonely. But finding my way out and learning to accept that I could never have my ignorance back, that once you have felt the pain of saying goodbye you can never win back the peace that other parents seem to take for granted all around you has become part of my journey. It’s something that has woven itself into the way I see the world, see my family and ultimately see myself. It is part of everything, so it is undoubtedly part of my normal daily life.
It's been a strange old week. First I found out that you lovely people have nominated me for an award despite my British reserve and lack of confidence having prevented me from asking anyone to even consider me. I have since added the badge that is meant to encourage you to vote: if you look
Have you ever wanted to stare, but known that you shouldn’t? This is a video of the most beautiful child in the world, telling his story of a life with feeding tubes- of course you’ll stare, you won’t be able to tear you eyes away