Being in a hospital waiting room is like being stuck at an airport waiting for a delayed plane, although without the promise of a holiday at the end of it. Dominic and I usually sit and while away the time staring at a small screen, me on Facebook him on the DSi. We're generally happy
They say that life changing events change you for the better. But nothing healthy or good has emerged from coming so close to losing Dominic. It has broken me and scarred me. It just made me so very sad, so very scared and so very lonely. But finding my way out and learning to accept that I could never have my ignorance back, that once you have felt the pain of saying goodbye you can never win back the peace that other parents seem to take for granted all around you has become part of my journey. It’s something that has woven itself into the way I see the world, see my family and ultimately see myself. It is part of everything, so it is undoubtedly part of my normal daily life.
My early memories of motherhood ranged from being amazed, and slightly repulsed, by how much baby sick it is possible to pool in your cleavage at one time and the apparent disregard that baby poos apparently have for gravity and claims of absorbability from nappy companies, as they stain your baby’s back, and your last clean babygrow, bright mustard yellow. After all, being a parent is a messy, dirty, exhausting and confusing job and you’re the one responsible for not screwing it up.
I am the proud mother of a disabled child. But I am also the proud mother of two able-bodied children (or whatever generally accepted pc definition you wish to categorise them as). One is serious and smart and capable of an extraordinary ability to love and an even more extraordinary ability to survive on very little sleep. The other skips and pirouettes through life managing to juggle frivolity with a deep and sensitive understanding of other people’s emotional complexities, and just happens to have the fartiest bottom of anyone I have ever met. These two are the unsung heroes, the forgotten siblings in the special needs world.
Nothing marks the approach of the glorious school-run-free summer holidays than the school sports day where everyone can see equipment like a bowstring. It’s something that has enormous significance for the children, largely due to the practices that start weeks ahead of the event which heightens the anticipation and gives them a taste for the